Australia’s active surveillance system for severe childhood disease
Your privacy is a top priority for us. When dealing with your personal information, we observe our obligations under the Privacy Act 1988 and comply with the Australian Privacy Principles, as well as other relevant state legislation.
When personal information is no longer required, we destroy or delete it in a secure manner, according to regulations outlined by the Administrative Functions Disposal Authority (AFDA).
The types of sensitive information we collect include records of communication between us, which may include, from time to time, information you provide us or we collect from others. This includes, but is not limited to, the following types of information:
We collect your information in the following ways:
NCIRS uses tools provided by third parties, such as Google Analytics, to review website traffic information. Information collected may include the IP address of the device and information about sites that IP address has come from, the pages you visit on our site and the previous site visited. We use this information to maintain, secure and improve your online experience.
You can opt out of Google Analytics data collection by using the Google Analytics Opt-out Browser Add-on.
NCIRS uses 'cookies' for maintaining contact with website users. Cookies are small files compiled when using the website which is stored by the web browser software on your computer. The Privacy Commission provides more information about cookies.
NCIRS does not identify users or their browsing activities unless legally requested by a law enforcement agency.
We will only use and disclose your personal information for the purpose(s) for which it was collected, or as otherwise permitted by law. We will not disclose the above information that we collect to affiliates or third parties without your consent. Sometimes we may be legally required to disclose your information, for example, to government departments where you request a criminal record check.
NCIRS does not use personal information for any medical-related research purpose. All medical research is conducted under the strict guidelines governed by legislation, and no information we collect from you in regular communications or by online interactions is used in medical research.
We may disclose your personal information to external support services such as volunteers, service providers, agencies and other not-for-profit organisations, like-minded organisations that contract and provide or perform services on our behalf.
We take reasonable steps to ensure that these companies are bound by confidentiality and privacy obligations when handling your personal information. If you don’t want your personal information disclosed to another company, please let us know at the time we collect your information.
All academic/research surveys conducted by NCIRS staff and/or students, which involve the collection of personal information, will have received approval from the Sydney Children’s Hospitals Network Ethics Committee. Contact details for the Ethics Committee will be included in each survey instrument.
Contact information from the surveys may be used to get in touch with the participant when necessary.
If personal information is collected via a website, this will be done by sufficiently secure means.
For certain applications, our site's registration forms require users to give contact information (like name and email address), and unique identifiers (like login identification and student number).
Unique identifiers (such as login identification) are collected from website visitors to verify the user's identity.
Occasionally we may use overseas facilities or contractors to process or back-up information or to provide other services. As a result, we may disclose your personal information to our overseas facilities or contractors for these purposes. Any disclosure of your personal information overseas does not change our commitment to safeguarding your privacy. We do not otherwise disclose or transfer your personal information overseas.
If you’re concerned about how we have collected or managed your personal information please call us on (02) 9845 1433. If you wish to raise an issue about your privacy, please contact us by email.
PAEDS receives fundingfrom the Australian government
NCIRS, Kids Research, Sydney Children’s Hospitals Network, Cnr Hawkesbury Rd & Hainsworth St, Westmead Locked Bag 4001, Westmead NSW 2145 Tel (612) 9845 1433 | Fax (612) 9845 1418 | ABN 53 188 579 090
We acknowledge that the National Centre for Immunisation Research & Surveillance (NCIRS) is on the land of the traditional owners the Aboriginal and Torres Strait Islander peoples, the First Australians, and recognise their culture, history, diversity and their deep connection to the land. Together, through research and partnership, we aim to move to a place of equity for all. NCIRS also acknowledges and pays respect to other Aboriginal and Torres Strait Islander nations from which our research, staff and community are drawn.
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